Q. Consider the following statements regarding National Policy for Rare Diseases, 2021:
1 Rare diseases that require lifelong treatment with a relatively lower cost have been categorized under Group

2 Central government shall provide one-time treatment support under Rashtriya Arogya Nidhi scheme for diseases listed under Group 1.

Which of the above statements is/are incorrect?

[A] 1 only

[B] 2 only

[C] Both 1 and 2

[D] Neither 1 nor 2

Answer: D

Both statements are correct

About National Policy for Rare Diseases,2021: The policy aims at lowering the incidence and prevalence of rare diseases based on an integrated and comprehensive preventive strategy comprising:

  • awareness generation
  • premarital, post-marital, pre-conception, and post-conception screening
  • counseling programmes to prevent births of children with rare diseases
  • enable access to affordable health care to patients of rare diseases.

Categorisation: The policy divides Rare Diseases into three groups, namely:

  • Group 1:Disorders amenable to one-time curative treatment.
  • Group 2: Diseases requiring long-term / lifelong treatment with a relatively lower cost of treatment.
  • Group 3:Diseases for which definitive treatment is available, but challenges are to make optimal patient selection for benefit, very high cost, and lifelong therapy.

Source: PIB