Govt publishes policy for treatment of rare diseases

News: Union Ministry of Health and Family Welfare published a national policy for treatment of rare diseases, listing 450 diseases as rare. Facts: Rare Disease: It is a health condition of low prevalence that affects a small number of people compared with other prevalent diseases in the general population. Example: Haemophilia, Thalassemia, Sickle cell anaemia,… Continue reading Govt publishes policy for treatment of rare diseases

Patients with rare diseases wait for support

News:Recently, it has been reported that the majority of patients suffering from Lysosomal Storage Disorders (a rare disease) has been waiting for support from the Government. Facts: About Lysosomal Storage Disorders:  Lysosomal storage disorders are a group of more than 50 rare diseases. They affect the lysosome which is a structure in your cells that… Continue reading Patients with rare diseases wait for support